VACHP: Medical Resources

Assistive Technology On-Line
This site is a searchable resource for all types of assistive technology and/or information.

Back Care and Lifting
Contains useful information for caregivers about protecting their backs when lifting children.

National Organization of Rare Disorders
NORD provides the largest searchable database on rare disorders. This also contains a comprehensive database of information on foundations, organizations, agencies and support groups that assist people affected by rare disorders and much more.

National Association of Children's Hospitals
Provides a list of national children's hospitals.

National Maternal and Child Health Clearinghouse
NMCHC provides information and educational materials and Sudden Infant Death Syndrome to public health and emergency medical practitioners and legal professionals, as well as to parents, families and the general public.

National Information Center for Children and Youth with Disabilities (NICHCY)
This site contains information on specific disabilities. Also offers publications on current disability issues, such as parent concerns, legal issues, assessment, inclusion, and siblings of children with disabilities.

Penn State Hershey Children's Hospital

Pennsylvania Chapter AAP Medical Home Initiatives
A new initiative for parents and caregivers of children with special health care needs to learn, share, connect and support one another.

Pennsylvania Health & Human Service Web Portal
Your one-stop online guide to services, programs, agencies and organizations in Pennsylvania.

Shriners Hospital for Children

National Spina Bifida Association
Serves adults and children whose lives have been touched by spina bifida. Lots of useful information on education, advocacy, research and service.

St. Christopher's Hospital for Children

Vent World
Contains ventilator product and supplier information, news, discussions, education, tools and vent resources for the respiratory and critical care community.


	General Medical Resources There are many resources regarding general healthcare, medical conditions, treatments and assistive technology on the Internet. Below are a few of the resources that our staff and other families have found helpful. Aaron's Tracheostomy Page This site provides a wide array of information to anyone seeking to learn more about tracheostomies. American Academy of Pediatrics This site provides information to support service providers and families through training, technical assistance, evaluation and research.	Philadelphia Office: 100 N. 20th Street Suite 201 Philadelphia, PA 19103 215-977-8830 215-977-8228 (FAX #) Pittsburgh Office: Children's Hospital of Pittsburgh of UPMC One Children's Hospital Drive 4401 Penn Avenue AOB, 2nd Floor Pittsburgh, PA 15224 1-877-KID-VENT
		Updated 03-24-2010
	Assistive Technology On-Line This site is a searchable resource for all types of assistive technology and/or information. Back Care and Lifting Contains useful information for caregivers about protecting their backs when lifting children. The Children's Hospital of Philadelphia Children's Hospital of Pittsburgh The DuPont Hospital for Children and the Nemours Children's Clinic Family Village This site integrates information, resources and communication opportunities on the Internet for persons with mental retardation and other disabilities, for their families, and for those who provide them services and support. International Ventilator Users Network IVUN links ventilator users with each other and with health care professionals interested in mechanical ventilation and home care. Geisinger--Janet Weis Children's Hospital Lehigh Valley Health Network National Organization of Rare Disorders NORD provides the largest searchable database on rare disorders. This also contains a comprehensive database of information on foundations, organizations, agencies and support groups that assist people affected by rare disorders and much more. National Association of Children's Hospitals Provides a list of national children's hospitals. National Maternal and Child Health Clearinghouse NMCHC provides information and educational materials and Sudden Infant Death Syndrome to public health and emergency medical practitioners and legal professionals, as well as to parents, families and the general public. National Information Center for Children and Youth with Disabilities (NICHCY) This site contains information on specific disabilities. Also offers publications on current disability issues, such as parent concerns, legal issues, assessment, inclusion, and siblings of children with disabilities. Penn State Hershey Children's Hospital Pennsylvania Chapter AAP Medical Home Initiatives A new initiative for parents and caregivers of children with special health care needs to learn, share, connect and support one another. Pennsylvania Health & Human Service Web Portal Your one-stop online guide to services, programs, agencies and organizations in Pennsylvania. Shriners Hospital for Children National Spina Bifida Association Serves adults and children whose lives have been touched by spina bifida. Lots of useful information on education, advocacy, research and service. St. Christopher's Hospital for Children Vent World Contains ventilator product and supplier information, news, discussions, education, tools and vent resources for the respiratory and critical care community.